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Bogolepova A.N.
Pirogov Russian National Research Medical University;
Federal Center of Brain Research and Neurotechnologies of the Federal Medical Biological Agency
Brovko E.V.
Zdorovie Goroda LLC (Zdorovie.ru)
Gavrilova S.I.
Mental Health Research Centre
Gantman M.V.
Center for Neuroeconomics and Cognitive Research of the Institute of Cognitive Neuroscience of the National Research University «Higher School of Economics»;
Foundation for Dementia Patients and their family support «AlcRus»
Dreval R.O.
Non-commercial partnership Center of Social Economics
Illarioshkin S.N.
Research Center of Neurology
Katunina E.A.
Federal Center of Brain and Neurotechnologies;
Pirogov Russian National Research Medical University
Konson C.
The International Medical Cluster Foundation;
Division of Geriatrics in Ministry of Health Southern District
Kostyuk G.P.
Alekseev Psychiatric Clinical Hospital No. 1
Kotovskaya Yu.V.
Russian Gerontological Research and Clinical Center
Levin O.S.
Russian Medical Academy of Continuous Professional Education
Litvinenko I.V.
Kirov Military Medical Academy
Medvedev V.E.
Peoples Friendship University of Russian
Mkhitaryan E.A.
Pirogov Russian National Research Medical University;
Russian Clinical and Research Center of Gerontology Pirogov — Russian National Research Medical University
Neznanov N.G.
Bekhterev National Medical Research Center for Psychiatry and Neurology;
Pavlov First Saint-Petersburg State Medical University
Onegina E.J.
Alekseev Mental-health Clinic No. 1
Parfenov V.A.
Sechenov First Moscow State Medical University
Fedotova E.Yu.
Research Center of Neurology
Shchetkina A.L.
Foundation for Dementia Patients and their family support «AlcRus»
Yakhno N.N.
Sechenov First Moscow State Medical University
Roadmap for ecosystem-based approach for patients with Alzheimer disease in Russia: current needs, barriers, and possible solutions (resolution of the scientific and practical experts meeting)
Journal: S.S. Korsakov Journal of Neurology and Psychiatry. 2022;122(7): 121‑131
Views: 7686
Downloaded: 119
To cite this article:
Bogolepova AN, Brovko EV, Gavrilova SI, et al. . Roadmap for ecosystem-based approach for patients with Alzheimer disease in Russia: current needs, barriers, and possible solutions (resolution of the scientific and practical experts meeting). S.S. Korsakov Journal of Neurology and Psychiatry.
2022;122(7):121‑131. (In Russ., In Engl.)
https://doi.org/10.17116/jnevro2022122071121
The care of a patient with Alzheimer’s disease (AD) is considered from the perspective of an ecosystem, that is, a systemic approach describing effective partnership, collaboration and research aimed at creating value, involving all participants in the AD patient journey. The effectiveness of this ecosystem is only possible with the involvement of all stakeholders in its development, including patients, healthcare professionals at all levels, government agencies, private companies, and patient organizations. The unmet health care and information needs of patients with AD are a consequence of barriers in the AD ecosystem. Key barriers for the patient include low awareness and stigmatization of the disease in society, lack of quality epidemiological data, difficulties in timely diagnosis, lack of prevention programs, unpreparedness of most physicians to conduct AD patient rehabilitation, and other factors. Based on the analysis of the ecosystem of AD and the patient pathway, 10 main directions (strategies) necessary for the formation of the ecosystem were identified: conducting research in the diagnosis and epidemiology of AD, creating and implementing a cognitive health program, forming a legal framework, raising public awareness, optimizing patient routing for timely diagnosis, organizing a network of memory clinics/laboratories, creating a register of patients with dementia, developing digital solutions and supporting social projects.
Authors:
Bogolepova A.N.
Pirogov Russian National Research Medical University;
Federal Center of Brain Research and Neurotechnologies of the Federal Medical Biological Agency
Brovko E.V.
Zdorovie Goroda LLC (Zdorovie.ru)
Gavrilova S.I.
Mental Health Research Centre
Gantman M.V.
Center for Neuroeconomics and Cognitive Research of the Institute of Cognitive Neuroscience of the National Research University «Higher School of Economics»;
Foundation for Dementia Patients and their family support «AlcRus»
Dreval R.O.
Non-commercial partnership Center of Social Economics
Illarioshkin S.N.
Research Center of Neurology
Katunina E.A.
Federal Center of Brain and Neurotechnologies;
Pirogov Russian National Research Medical University
Konson C.
The International Medical Cluster Foundation;
Division of Geriatrics in Ministry of Health Southern District
Kostyuk G.P.
Alekseev Psychiatric Clinical Hospital No. 1
Kotovskaya Yu.V.
Russian Gerontological Research and Clinical Center
Levin O.S.
Russian Medical Academy of Continuous Professional Education
Litvinenko I.V.
Kirov Military Medical Academy
Medvedev V.E.
Peoples Friendship University of Russian
Mkhitaryan E.A.
Pirogov Russian National Research Medical University;
Russian Clinical and Research Center of Gerontology Pirogov — Russian National Research Medical University
Neznanov N.G.
Bekhterev National Medical Research Center for Psychiatry and Neurology;
Pavlov First Saint-Petersburg State Medical University
Onegina E.J.
Alekseev Mental-health Clinic No. 1
Parfenov V.A.
Sechenov First Moscow State Medical University
Fedotova E.Yu.
Research Center of Neurology
Shchetkina A.L.
Foundation for Dementia Patients and their family support «AlcRus»
Yakhno N.N.
Sechenov First Moscow State Medical University
Received:
10.06.2022
Accepted:
14.06.2022
List of references:
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