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Bogolepova A.N.

Pirogov Russian National Research Medical University;
Federal Center of Brain Research and Neurotechnologies of the Federal Medical Biological Agency

Brovko E.V.

Zdorovie Goroda LLC (Zdorovie.ru)

Gavrilova S.I.

Mental Health Research Centre

Gantman M.V.

Center for Neuroeconomics and Cognitive Research of the Institute of Cognitive Neuroscience of the National Research University «Higher School of Economics»;
Foundation for Dementia Patients and their family support «AlcRus»

Dreval R.O.

Non-commercial partnership Center of Social Economics

Illarioshkin S.N.

Research Center of Neurology

Katunina E.A.

Federal Center of Brain and Neurotechnologies;
Pirogov Russian National Research Medical University

Konson C.

The International Medical Cluster Foundation;
Division of Geriatrics in Ministry of Health Southern District

Kostyuk G.P.

Alekseev Psychiatric Clinical Hospital No. 1

Kotovskaya Yu.V.

Russian Gerontological Research and Clinical Center

Levin O.S.

Russian Medical Academy of Continuous Professional Education

Litvinenko I.V.

Kirov Military Medical Academy

Medvedev V.E.

Peoples Friendship University of Russian

Mkhitaryan E.A.

Pirogov Russian National Research Medical University;
Russian Clinical and Research Center of Gerontology Pirogov — Russian National Research Medical University

Neznanov N.G.

Bekhterev National Medical Research Center for Psychiatry and Neurology;
Pavlov First Saint-Petersburg State Medical University

Onegina E.J.

Alekseev Mental-health Clinic No. 1

Parfenov V.A.

Sechenov First Moscow State Medical University

Tkacheva O.N.

Pirogov Russian National Research Medical University

Fedotova E.Yu.

Research Center of Neurology

Shchetkina A.L.

Foundation for Dementia Patients and their family support «AlcRus»

Yakhno N.N.

Sechenov First Moscow State Medical University

Roadmap for ecosystem-based approach for patients with Alzheimer disease in Russia: current needs, barriers, and possible solutions (resolution of the scientific and practical experts meeting)

Authors:

Bogolepova A.N., Brovko E.V., Gavrilova S.I., Gantman M.V., Dreval R.O., Illarioshkin S.N., Katunina E.A., Konson C., Kostyuk G.P., Kotovskaya Yu.V., Levin O.S., Litvinenko I.V., Medvedev V.E., Mkhitaryan E.A., Neznanov N.G., Onegina E.J., Parfenov V.A., Tkacheva O.N., Fedotova E.Yu., Shchetkina A.L., Yakhno N.N.

More about the authors

Journal: S.S. Korsakov Journal of Neurology and Psychiatry. 2022;122(7): 121‑131

DOI: 10.17116/jnevro2022122071121

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Table of contents

ROADMAP FOR ECOSYSTEM-BASED APPROACH FOR PATIENTS WITH ALZHEIMER DISEASE IN RUSSIA: CURRENT NEEDS, BARRIERS, AND POSSIBLE SOLUTIONS (RESOLUTION OF THE SCIENTIFIC AND PRACTICAL EXPERTS MEETING)
ROADMAP FOR ECOSYSTEM-BASED APPROACH FOR PATIENTS WITH ALZHEIMER DISEASE IN RUSSIA: CURRENT NEEDS, BARRIERS, AND POSSIBLE SOLUTIONS (RESOLUTION OF THE SCIENTIFIC AND PRACTICAL EXPERTS MEETING)

To cite this article:

Bogolepova AN, Brovko EV, Gavrilova SI, et al. . Roadmap for ecosystem-based approach for patients with Alzheimer disease in Russia: current needs, barriers, and possible solutions (resolution of the scientific and practical experts meeting). S.S. Korsakov Journal of Neurology and Psychiatry. 2022;122(7):121‑131. (In Russ., In Engl.)
https://doi.org/10.17116/jnevro2022122071121

Подписка 2026 Журнал неврологии и психиатрии им. С.С. Корсакова (S.S. Korsakov Journal of Neurology and Psychiatry)
МСФ на ЯМ
Использование инфографики авторами научных работ
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Abstract:

The care of a patient with Alzheimer’s disease (AD) is considered from the perspective of an ecosystem, that is, a systemic approach describing effective partnership, collaboration and research aimed at creating value, involving all participants in the AD patient journey. The effectiveness of this ecosystem is only possible with the involvement of all stakeholders in its development, including patients, healthcare professionals at all levels, government agencies, private companies, and patient organizations. The unmet health care and information needs of patients with AD are a consequence of barriers in the AD ecosystem. Key barriers for the patient include low awareness and stigmatization of the disease in society, lack of quality epidemiological data, difficulties in timely diagnosis, lack of prevention programs, unpreparedness of most physicians to conduct AD patient rehabilitation, and other factors. Based on the analysis of the ecosystem of AD and the patient pathway, 10 main directions (strategies) necessary for the formation of the ecosystem were identified: conducting research in the diagnosis and epidemiology of AD, creating and implementing a cognitive health program, forming a legal framework, raising public awareness, optimizing patient routing for timely diagnosis, organizing a network of memory clinics/laboratories, creating a register of patients with dementia, developing digital solutions and supporting social projects.

Keywords:

Alzheimer’s disease
ecosystem around the patient
needs
barriers
solutions
roadmap

Authors:

Bogolepova A.N.

Pirogov Russian National Research Medical University;
Federal Center of Brain Research and Neurotechnologies of the Federal Medical Biological Agency

Brovko E.V.

Zdorovie Goroda LLC (Zdorovie.ru)

Gavrilova S.I.

Mental Health Research Centre

Gantman M.V.

Center for Neuroeconomics and Cognitive Research of the Institute of Cognitive Neuroscience of the National Research University «Higher School of Economics»;
Foundation for Dementia Patients and their family support «AlcRus»

Dreval R.O.

Non-commercial partnership Center of Social Economics

Illarioshkin S.N.

Research Center of Neurology

Katunina E.A.

Federal Center of Brain and Neurotechnologies;
Pirogov Russian National Research Medical University

Konson C.

The International Medical Cluster Foundation;
Division of Geriatrics in Ministry of Health Southern District

Kostyuk G.P.

Alekseev Psychiatric Clinical Hospital No. 1

Kotovskaya Yu.V.

Russian Gerontological Research and Clinical Center

Levin O.S.

Russian Medical Academy of Continuous Professional Education

Litvinenko I.V.

Kirov Military Medical Academy

Medvedev V.E.

Peoples Friendship University of Russian

Mkhitaryan E.A.

Pirogov Russian National Research Medical University;
Russian Clinical and Research Center of Gerontology Pirogov — Russian National Research Medical University

Neznanov N.G.

Bekhterev National Medical Research Center for Psychiatry and Neurology;
Pavlov First Saint-Petersburg State Medical University

Onegina E.J.

Alekseev Mental-health Clinic No. 1

Parfenov V.A.

Sechenov First Moscow State Medical University

Tkacheva O.N.

Pirogov Russian National Research Medical University

Fedotova E.Yu.

Research Center of Neurology

Shchetkina A.L.

Foundation for Dementia Patients and their family support «AlcRus»

Yakhno N.N.

Sechenov First Moscow State Medical University

Received:

10.06.2022

Accepted:

14.06.2022

Close metadata

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