OBJECTIVE

To present the experts’ council results on the topic «Short bowel syndrome in children. The current state of the problem and treatment in the Russian Federation». It was devoted to the current state and prospects of healthcare delivery for children with short bowel syndrome (SBS).

KEY POINTS

SBS is a complex disease in which treatment requires efforts of a wide range of healthcare specialists and resources. According to the national registry 220 children have SBS in the Russian Federation, experts estimate that number is ranged from 350 to 400; calculated estimations showed that this number even higher. Medical care for children with SBS is continuously improving, which leads to scaled demand up. An increasing number of these patients exacerbates the existing problems, namely the inability to deliver high-quality medical care for each child and the absence of standard clinical guidelines. During the council, leading national experts shared their opinion on the current practice and experience in the treatment of SBS. They discussed specific steps to improve medical care for children with SBS. The meeting resulted in a set of stages for improving medical care and a resolution of the experts’ council on the treatment of pediatric SBS.

CONCLUSION

The implementation of suggested strategies and practical steps should improve the quality of pediatric SBS management in the Russian Federation.