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A.N. Bogolepova
Pirogov Russian National Research Medical University;
Federal Center of Brain Research and Neurotechnologies of the Federal Medical Biological Agency
E.V. Brovko
Zdorovie Goroda LLC (Zdorovie.ru)
S.I. Gavrilova
Mental Health Research Centre
M.V. Gantman
Center for Neuroeconomics and Cognitive Research of the Institute of Cognitive Neuroscience of the National Research University «Higher School of Economics»;
Foundation for Dementia Patients and their family support «AlcRus»
R.O. Dreval
Non-commercial partnership Center of Social Economics
S.N. Illarioshkin
Research Center of Neurology
E.A. Katunina
Federal Center of Brain and Neurotechnologies;
Pirogov Russian National Research Medical University
C. Konson
The International Medical Cluster Foundation;
Division of Geriatrics in Ministry of Health Southern District
G.P. Kostyuk
Alekseev Psychiatric Clinical Hospital No. 1
Yu.V. Kotovskaya
Russian Gerontological Research and Clinical Center
O.S. Levin
Russian Medical Academy of Continuous Professional Education
I.V. Litvinenko
Kirov Military Medical Academy
V.E. Medvedev
Peoples Friendship University of Russian
E.A. Mkhitaryan
Pirogov Russian National Research Medical University;
Russian Clinical and Research Center of Gerontology Pirogov — Russian National Research Medical University
N.G. Neznanov
Bekhterev National Medical Research Center for Psychiatry and Neurology;
Pavlov First Saint-Petersburg State Medical University
E.J. Onegina
Alekseev Mental-health Clinic No. 1
V.A. Parfenov
Sechenov First Moscow State Medical University
E.Yu. Fedotova
Research Center of Neurology
A.L. Shchetkina
Foundation for Dementia Patients and their family support «AlcRus»
N.N. Yakhno
Sechenov First Moscow State Medical University
Roadmap for ecosystem-based approach for patients with Alzheimer disease in Russia: current needs, barriers, and possible solutions (resolution of the scientific and practical experts meeting)
Journal: S.S. Korsakov Journal of Neurology and Psychiatry. 2022;122(7): 121‑131
Views: 6711
Downloaded: 67
To cite this article:
Bogolepova AN, Brovko EV, Gavrilova SI, Gantman MV, Dreval RO, Illarioshkin SN, Katunina EA, Konson C, Kostyuk GP, Kotovskaya YuV, Levin OS, Litvinenko IV, Medvedev VE, Mkhitaryan EA, Neznanov NG, Onegina EJ, Parfenov VA, Tkacheva ON, Fedotova EYu, Shchetkina AL, Yakhno NN. Roadmap for ecosystem-based approach for patients with Alzheimer disease in Russia: current needs, barriers, and possible solutions (resolution of the scientific and practical experts meeting). S.S. Korsakov Journal of Neurology and Psychiatry.
2022;122(7):121‑131. (In Russ., In Engl.)
https://doi.org/10.17116/jnevro2022122071121
The care of a patient with Alzheimer’s disease (AD) is considered from the perspective of an ecosystem, that is, a systemic approach describing effective partnership, collaboration and research aimed at creating value, involving all participants in the AD patient journey. The effectiveness of this ecosystem is only possible with the involvement of all stakeholders in its development, including patients, healthcare professionals at all levels, government agencies, private companies, and patient organizations. The unmet health care and information needs of patients with AD are a consequence of barriers in the AD ecosystem. Key barriers for the patient include low awareness and stigmatization of the disease in society, lack of quality epidemiological data, difficulties in timely diagnosis, lack of prevention programs, unpreparedness of most physicians to conduct AD patient rehabilitation, and other factors. Based on the analysis of the ecosystem of AD and the patient pathway, 10 main directions (strategies) necessary for the formation of the ecosystem were identified: conducting research in the diagnosis and epidemiology of AD, creating and implementing a cognitive health program, forming a legal framework, raising public awareness, optimizing patient routing for timely diagnosis, organizing a network of memory clinics/laboratories, creating a register of patients with dementia, developing digital solutions and supporting social projects.
Authors:
A.N. Bogolepova
Pirogov Russian National Research Medical University;
Federal Center of Brain Research and Neurotechnologies of the Federal Medical Biological Agency
E.V. Brovko
Zdorovie Goroda LLC (Zdorovie.ru)
S.I. Gavrilova
Mental Health Research Centre
M.V. Gantman
Center for Neuroeconomics and Cognitive Research of the Institute of Cognitive Neuroscience of the National Research University «Higher School of Economics»;
Foundation for Dementia Patients and their family support «AlcRus»
R.O. Dreval
Non-commercial partnership Center of Social Economics
S.N. Illarioshkin
Research Center of Neurology
E.A. Katunina
Federal Center of Brain and Neurotechnologies;
Pirogov Russian National Research Medical University
C. Konson
The International Medical Cluster Foundation;
Division of Geriatrics in Ministry of Health Southern District
G.P. Kostyuk
Alekseev Psychiatric Clinical Hospital No. 1
Yu.V. Kotovskaya
Russian Gerontological Research and Clinical Center
O.S. Levin
Russian Medical Academy of Continuous Professional Education
I.V. Litvinenko
Kirov Military Medical Academy
V.E. Medvedev
Peoples Friendship University of Russian
E.A. Mkhitaryan
Pirogov Russian National Research Medical University;
Russian Clinical and Research Center of Gerontology Pirogov — Russian National Research Medical University
N.G. Neznanov
Bekhterev National Medical Research Center for Psychiatry and Neurology;
Pavlov First Saint-Petersburg State Medical University
E.J. Onegina
Alekseev Mental-health Clinic No. 1
V.A. Parfenov
Sechenov First Moscow State Medical University
E.Yu. Fedotova
Research Center of Neurology
A.L. Shchetkina
Foundation for Dementia Patients and their family support «AlcRus»
N.N. Yakhno
Sechenov First Moscow State Medical University
Received:
10.06.2022
Accepted:
14.06.2022
List of references:
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