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A life in motion

Journal: Non Nocere. New Therapeutic Journal. 2024;(12‑2): 22‑27

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A life in motion. Non Nocere. New Therapeutic Journal. 2024;(12‑2):22‑27. (In Russ.)

 
 
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Abstract:

What doctors need to know about optimizing physical activity in patients with hemophilia A. This material was prepared by the editorial staff of Non Nocere magazine on the basis of a teleseminar within the framework of the project “Joint Health in Hemophilia A”.

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References:

  1. An interview with Dr. Carmen Escuriola-Ettingshausen. 20.09.2021. https://www.news-medical.net/news/20200921/Providing-personalized-care-for-bleeding-disorders.aspx
  2. National Hemophilia Foundation. https://www.hemophilia.org
  3. Ai D, Huang K, Li G, Zhen Y, Wu X, Zhang N, Huo A, Chen Z, Wu R. Exploration of the minimum necessary FVIII level at different physical activity levels in pediatric patients with hemophilia A. Front Pediatr. 2022 Nov 1;10:1045070. https://doi.org/10.3389/fped.2022.1045070
  4. Howell C, Scott K, Patel DR. Sports participation recommendations for patients with bleeding disorders. Transl Pediatr. 2017 Jul;6(3):174-180.  https://doi.org/10.21037/tp.2017.04.07
  5. Pratap R, Misra M, N V, Morampudi S, Patil A, Reddy J. The existing scenario of haemophilia care in Canada and China – A review. Hematol Transfus Cell Ther. 2020 Oct-Dec;42(4):356-364.  https://doi.org/10.1016/j.htct.2019.08.001
  6. MyPKFiT Software User Manual. Version 3.3 (version for physicians).
  7. Gringeri A, Ewenstein B, Reininger A. The burden of bleeding in haemophilia: is one bleed too many? Haemophilia. 2014 Jul;20(4):459-463.  https://doi.org/10.1111/hae.12375
  8. Anderson A, Forsyth A. Playing It Safe – Bleeding Disorders, Sports and Exercise, 2017. https://vwdconnect.org/wp-content/uploads/2018/02/Playing-It-Safe.pdf
  9. State register of medical devices and organizations engaged in the production and manufacture of medical devices. https://roszdravnadzor.gov.ru/services/misearch
  10. Martin AP, Burke T, Asghar S, Noone D, Pedra G, O’Hara J. Understanding minimum and ideal factor levels for participation in physical activities by people with haemophilia: An expert elicitation exercise. Haemophilia. 2020 Jul;26(4):711-717.  https://doi.org/10.1111/hae.13985
  11. Dirzu N, Hotea I, Jitaru C, et al. Mobile Health Technology for the Personalized Therapy of Hemophilia. Front Med (Lausanne). 2021 Aug 10;8:711973. https://doi.org/10.3389/fmed.2021.711973
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