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Soynov I.A.

Meshalkin Novosibirsk National Medical Research Center of Healthcare Ministry of Russia, Novosibirsk, Russia, Federal Center for Cardiovascular Surgery of Healthcare Ministry of Russia, Perm, Russia, Topchibashov Research Center for Surgery of Healthcare Ministry of Azerbaijan, Baku, Azerbaijan

Kulyabin Yu.Yu.

Meshalkin National Medical Research Center, Ministry of Health of the Russia, Novosibirsk, Russia

Omel'chenko A.Iu.

FGBU "Novosibirskiĭ nauchno-issledovatel'skiĭ institut patologii krovoobrashcheniia im. akad. E.N. Meshalkina" Minzdrava Rossii

Leykekhman A.V.

Academician Meshalkin National Medical Research Center of the Ministry of Health of Russia, Novosibirsk, Russia

Voitov A.V.

Meshalkin National Medical Research Center, Ministry of Health of the Russia, Novosibirsk, Russia

Gorbatykh Iu.N.

Novosibirskiĭ nauchno-issledovatel'skiĭ institut patologii krovoobrashcheniia im. akad. E.N. Meshalkina Minzdravsotsrazvitiia Rossii

Arkhipov A.N.

Academician E.N. Meshalkin National medical research center, Novosibirsk, Russia

Bogachev-Prokof'ev A.V.

FGBU "Novosibirskiĭ NII patologii krovoobrashcheniia im. akad. E.N. Meshalkina" Minzdravsotsrazvitiia Rossii

Home monitoring of patients with hypoplastic left heart syndrome within the interstage period

Authors:

Soynov I.A., Kulyabin Yu.Yu., Omel'chenko A.Iu., Leykekhman A.V., Voitov A.V., Gorbatykh Iu.N., Arkhipov A.N., Bogachev-Prokof'ev A.V.

More about the authors

Read: 1877 times


To cite this article:

Soynov IA, Kulyabin YuYu, Omel'chenko AIu, et al. . Home monitoring of patients with hypoplastic left heart syndrome within the interstage period. Russian Journal of Cardiology and Cardiovascular Surgery. 2020;13(2):134‑141. (In Russ.)
https://doi.org/10.17116/kardio202013021134

References:

  1. Javed R, Cetta F, Said SM, Olson TM, O’Leary PW, Qureshi MY. Hypoplastic left heart syndrome: an overview for primary care providers. . 2019 July;40(7):344-353.
  2. Feinstein JA, Benson DW, Dubin AM, Cohen MS, Maxey DM, Mahle WT, et al. Hypoplastic left heart syndrome: current considerations and expectations. . 2012 Jan 3;59(1 Suppl):S1-42.
  3. Hansen JH, Furck AK, Petko C, et al. Use of surveillance criteria reduces interstage mortality after the Norwood operation for hypoplastic left heart syndrome. . 2012;41(5):1013-1018.
  4. Ghanayem NS, Hoffman GM, Mussatto KA, et al. Home surveillance program prevents interstage mortality after the Norwood procedure. . 2002;126(5):1367-1375.
  5. Ugonabo N, Hirsch-Romano JC, Uzark K. The role of home monitoring in interstage management of infants following the Norwood procedure. . 2015 Apr;6(2):266-273.
  6. Srinivasan C, Jaquiss RD, Morrow WR, et al. Impact of staged palliation on somatic growth in patients with hypoplastic left heart syndrome. . 2010;5(6):546-551.
  7. Ghanayem NS, Cava JR, Jaquiss RD, Tweddell JS. Home monitoring of infants after stage one palliation for hypoplastic left heart syndrome. . 2004;7:32-38.
  8. Gardner MM, Mercer-Rosa L, Faerber J, DiLorenzo MP, Bates KE, Stagg A, et al. Association of a home monitoring program with interstage and stage 2 outcomes. . 2019 May 21;8(10):e010783.
  9. Nieves JA, Uzark K, Rudd NA, Strawn J, Schmelzer A, Dobrolet N. Interstage Home monitoring after newborn first-stage palliation for hypoplastic left heart syndrome: family education strategies. . 2017 Apr;37(2):72-88.
  10. Rudd N, Fommelt MA, Hehir DA, Slicker JA, Mussatto KA, Ghanayem NS. Improving interstage survival after Norwood operation: outcomes following 10 years of home monitoring. . 2014;148(4):1540-1547.
  11. Nieves JA, Rudd NA, Dobrolet N. Home surveillance monitoring for high risk congenital heart newborns: Improving outcomes after single ventricle palliation — why, how & results. . 2018;48:14-25.
  12. Fuller S, Ghanayem N, Chai P, Nigro J, Kleisli T, Tabbutt S. Neonatal surgical reconstruction and peri-operative care for hypoplastic left heart syndrome: current strategies. . 2011;21(Suppl 2):38-46.
  13. Lamers LJ, Frommelt PC, Mussatto KA, Jaquiss RD, Mitchell ME, Tweddell JS. Coarctectomy combined with an interdigitating arch reconstruction results in a lower incidence of recurrent arch obstruction after the Norwood procedure than coarctectomy alone. . 2011;143(5):1098-1102.
  14. Lowry AW. Resuscitation and perioperative management of the high-risk single ventricle patient: first-stage palliation. . 2012;7(5):466-478.
  15. Ghanayem NS, Allen KR, Tabbutt S, et al. Interstage mortality after the Norwood procedure: results of the multicenter single ventricle reconstruction trial. . 2012;144(4):896-906.
  16. Sinelnikov YuS, Gasanov EN, Soynov IA, Mirzazade FA. Fatal renal and neurological complications after aortic arch repair in newborns. . 2018.(6):77-82. (In Russ.)
  17. Gorbatykh AV, Soynov IA, Nichay NR, Ivantsov SM, Voytov AV, Kulyabin YuYu, Gorbatykh YuN, Bogachev-Prokofyev AV. Risk factors for aortic recoarctation development in young children. . 2017;96(3):118-124. (In Russ.)
  18. Feinstein JA, Benson W, Dubin AM, et al. Hypoplastic left heart syndrome: current considerations and expectations. . 2012;59(1 Suppl):S1-S42.
  19. Chauhan M, Mastropietro CW. Hypoplastic left heart syndrome in the emergency department: an update. . 2014;46(2):e51-e54.
  20. Vitanova K, Cleuziou J, Pabst von Ohain J, Burri M, Eicken A, Lange R. Recoarctation after Norwood I procedure for hypoplastic left heart syndrome: impact of patch material. . 2017;103:617-621.
  21. Li JS, Yow E, Berezny KY, et al. Clinical outcomes of palliative surgery including a systemic-to-pulmonary artery shunt in infants with cyanotic congenital heart disease: does aspirin make a difference? . 2007;116(3):293-297.
  22. Salve GG, Datar GM, Perumal G, Singh AAV, Ayer JG, Roberts P, et al. Impact of High-Risk Characteristics in Hypoplastic Left Heart Syndrome. . 2019 July;10(4):475-484.
  23. Ringewald JM, Stapleton G, Suh EJ. The hybrid approach — current knowns and unknowns: the perspective of cardiology. . 2011;21(Suppl 2):47-52.
  24. Chai PJC. Hybrid palliation of for hypoplastic left heart syndrome: where do we stand now? . 2015;149:194.
  25. Ohye RG, Schonbeck JV, Eghtesady P, Laussen PC, Pizarro C, Pearson GD. Cause, timing, and location of death in the Single Ventricle Reconstruction trial. . 2012;144(4):907-914.
  26. Yabrodi M, Masropietro CW. Hypoplastic left heart syndrome: from comfort care to long-term survival. . 2017;81:142-149.
  27. Miller-Tate H, Stewart J, Allen R, et al. Interstage weight gain for patient with hypoplastic left heart syndrome undergoing the hybrid procedure. . 2013;8(3):228-233.
  28. Hanke SP, Joy B, Riddle E, Ravishankar C, Peterson LE, King E, et al. Risk factors for unanticipated readmission during the interstage: a report from the National Pediatric Cardiology Quality Improvement Collaborative. . 2016 Winter;28(4):803-814.
  29. Dobrolet NC, Nieves JA, Welch EM, Khan D, Rossi AF, Burke RP, Zahn EM. New approach to interstage care for palliated high-risk patients with congenital heart disease. . 2011 Oct;142(4):855-860.
  30. Slicker J, Hehir DA, Horsley M, Monczka J, Stern KW, Roman B, et al. Nutrition algorithms for infants with hypoplastic left heart syndrome; birth through the first interstage period. . 2013 Mar-Apr;8(2):89-102.
  31. National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). Accessed Jan 3, 2019.
  32. Anderson JB, Beekman RH, Kugler JD, et al. Improvement in interstage survival in a national pediatric cardiology learning network. . 2015;8(4):428-436.
  33. Meakins L, Ray L, Hegadoren K, Rogers LG, Rempel GR. Parental vigilance in caring for their children with hypoplastic left heart syndrome. . 2015;41(1):31-41, 50.
  34. Sarajuuri A, Lonnqvist T, Schmitt F, Almqvist F, Jokinen E. Patient with univentricular heart in early childhood: parenting stress and child behaviour. . 2012;101(3):252-257.
  35. Werner H, Latal B, Buechel EV, Beck I, Landolt MA. The impact of an infant’s severe congenital heart disease on the family: a prospective cohort study. . 2014;9(3):203-210.
  36. Clauss SB, Anderson JB, Lannon C, et al. Quality improvement through collaboration: the National Pediatric Cardiology Quality Improvement Collaborative initiative. . 2015;27(5):555-562.
  37. Theofilou P. Communication among healthcare professionals: a central factor in patient outcome. . 2011;1:e101
  38. Kugler JD, Beekman RH, Rosenthal GL, et al. Development of a pediatric cardiology quality improvement collaboration: from inception to implementation. From the Joint Council on Congenital Heart Disease Quality Improvement Task force. . 2009;4(3):318-328.
  39. Siehr SL, Norris JK, Bushnell JA, et al. Home monitoring program reduces interstage mortality after the modified Norwood procedure. . 2014;147(2):718-723.
  40. Cross RR, Harahsheh AS, McCarter R, Martin G; National Pediatric Cardiology Quality Improvement Collaborative. Identified mortality risk factors associated with presentation, initial hospitalization, and interstage period for the Norwood operation in a multi-center registry: a report from the National Pediatric Cardiology-Quality Improvement Collaborative. . 2014;24(2):253-262.
  41. Boris JR. Primary care cardiology for patients with hypoplastic left heart syndrome. . 2011;21(Suppl 2):53-58.
  42. Alsoufi B, Gillespie S, Mori M, Clabby M, Kanter K, Kogon B. Factors affecting death and progression towards next stage following modified Blalock-Taussig shunt in neonates. . 2016 July;50(1):169-177.
  43. Kelleher DK, Laussen P, Teixeira-Pinto A, Duggan C. Growth and correlates of nutritional status among infants with hypoplastic left heart syndrome (HLHS) after stage 1 Norwood procedure. . 2006 Mar;22(3):237-244.
  44. Hehir DA, Ghanayem NS. Single-ventricle infant home monitoring programs: outcomes and impact. . 2013 Mar;28(2):97-102.
  45. Anderson JB, Iyer SB, Schidlow DN, Williams R, Varadarajan K, Horsley M, et al. Variation in growth of infants with a single ventricle. . 2012 July;161(1):16-21.e1.
  46. Hehir DA, Rudd N, Slicker J, Mussatto KA, Simpson P, Li SH, et al. Normal interstage growth after the norwood operation associated with interstage home monitoring. . 2012 Dec;33(8):1315-22
  47. Hebson CL, Oster ME, Kirshbom PM, Clabby ML, Wulkan ML, Simsic JM. Association of feeding modality with interstage mortality after single-ventricle palliation. . 2012 July;144(1):173-177.
  48. Uzark K, Wang Y, Rudd N, Elixson EM, Strawn J, Nieves JA, et al. Interstage feeding and weight gain in infants following the Norwood operation: can we change the outcome? . 2012 Oct;22(5):520-527.
  49. Todd FE, Roberg KA, Welliver RC. Preventing RSV infection in at-risk infants: current and emerging strategies. . 2010;3-14.
  50. McAlvin B, Clabby ML, Kirshbom PM, Kanter KR, Kogon BE, Mahle WT. Routine immunizations and adverse events in infants with single-ventricle physiology. . 2007 Oct;84(4):1316-1319.
  51. Mussatto KA, Hollenbeck-Pringle D, Trachtenberg F, Sood E, Sananes R, Pike NA, et al. Utilisation of early intervention services in young children with hypoplastic left heart syndrome. . 2018 Jan;28(1):126-133.
  52. Mussatto KA, Hoffmann RG, Hoffman GM, Tweddell JS, Bear L, Cao Y, Brosig C. Risk and prevalence of developmental delay in young children with congenital heart disease. . 2014 Mar;133(3):e570-e577.

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